Showing posts with label chemo brain. Show all posts
Showing posts with label chemo brain. Show all posts

Tuesday, May 14, 2013

BRCA and Brains

Did you hear Angelina Jolie has the BRCA 1 genetic mutation and had a bilateral mastectomy with immediate reconstruction to combat the effects? Because I heard. I have heard about it more than the Boston bombings. I don't know if it's actually newsworthy or if my tiny world of breast cancer is highlighting it. I am glad she was tested and is taking it seriously. I'm glad she's drawing attention to it, because so many women don't know about it. People don't usually get tested until they are diagnosed with cancer. Obviously my life would have been very different if I had known. I think about it a lot because there's a 50/50 chance my kids have it (assuming I still do, I'm still waiting on the results of the study I enrolled in, just to see if God changed my genetic makeup when He healed me. Come on, it's God, that's nothing for Him). Anyway, the knowledge of the BRCA test results can create fear and I hate that. I hate that cancer can control us like that, and ESPECIALLY that just the fear of it can affect us for the worse. But I did read her article and liked the positive approach to it. Instead of living in fear, she just got the surgeries.  The ovary removal is another strongly recommended procedure, but that affects us much more, so it's a bigger deal. They won't test anyone under 18 so I have about 13 more years of praying for my girls to not have the gene, and that if they do we will know how to handle it. I hate that they might ever be faced with that uncertainty, or the disfigurement, but I know that doing it as a preventive measure is immensely better than the way I had to do it. I know that anyone with that genetic mutation can take a different approach to their future than those without, but that doesn't mean their actions will control cancer. But God can. He can control every disease, every germ, every multiplication or division of cells. We are all in for a miserable life if we confuse our ability to choose with the ability to control. 

Isaiah 46:9-10, "I am God, and there is no other; I am God, and there is none like me, declaring the end from the beginning, and from ancient times things that are not yet done, saying, 'My counsel shall stand, and I will do all my pleasure.'"

BRCA genes and brains don't exactly go hand-in-hand, BUT BRCA mutations lead to cancer, and cancer treatment messes with your...I lost my train of thought. Oh, right, your brain! People call it chemo brain, and refer to it in a similar way that you would joke about your brain when pregnant. Sadly though, I already went through the memory loss and distraction associated with having little ones, so I feel like chemo did extra damage to me. On a typical day it isn't that big of a deal because I don't use the same parts of my brain that seem to have been affected. On a normal day I just trudge through my to-do list, driving here or there, disciplining this one or that one, and trying to make it through the day without yelling. On a day like today though, I needed my brain. Yaacov had to leave town on a last minute business trip, so I had to organize two different babysitters for the monthly consulting meeting I go to. I prepared all yesterday so I would be on time and the kids would be adequately packed. So this morning I'm meandering out of the house when I remember to check which building my meeting is in. Turned out it was in a whole different city (and time zone), so I was terribly late. While sitting in the meeting I tried to speak and realized that the words I was trying to recall were lost. The concept is there, but I don't have any idea how to label them. Then, at about 4pm Yaacov and I spoke on the phone and he reminded me that Abi had a t-ball game at 6:30. Failed again. At 8 pm it dawned on me that we missed it. So, instead of complaining about it I'm going to research specific brain-improving (see, this is a time I'm quite sure there's a real term for what I mean) techniques, and I'm going to operationalize and track the improvement so I know what works best for me. If you have any theories, let me know and maybe I'll include them. Stay tuned!

Genesis 28:15 "I am with you and will watch over you wherever you go, and I will bring you back to this land. I will not leave you until I have done what I have promised you."

Saturday, December 31, 2011

New Year

We made it through 2011 and I have some hair left, too! I can't believe how long ago last New Year's seems. Despite the circumstances, I am confident that 2012 will be the best year of my life. I normally have a long list of resolutions and goals, but this year I just plan to be healed, and to be the most amazing mother, daughter, wife, friend, and sister I can be.

Some people have asked for specific prayers and as we only have a week before traveling to Houston I thought I'd put them out there. I suspect I will have a PET scan or another way of searching for cancer, so we're praying specifically that it will show supernatural healing in my spine. Chemotherapy can not destroy the cancer there, so this is asking for a miracle. James 5:15 says, "And the prayer offered in faith will make the sick person well; the Lord will raise him up."  Of course, we also are praying for the doctors to be wise and that we will have clarity about what recommendations (if any), and other steps to take. Proverbs 3:7-8 says, "Do not be wise in your own eyes, fear the Lord and shun evil. This will bring health to your body and nourishment to your bones."

They say you need to keep a sense of humor during these tough times, so I'll end 2011 on a lighter note. I have been doing some silly things lately which I blame on a phenomenon people call "Chemo Brain". Hopefully you can see the humor in my ditziness--here's a list of the goofiest moves I've made since my diagnosis:
--used the men's room at the Mayo Clinic (without noticing until hours later)
--put baby Naomi in her big sister's carseat and drove down the road with her tiny peanut head peeking at me from the forward facing chair.
--put 2011 on Abigail's 2012 birthday invtations
--forgot where I hid all the Christmas gifts (found them hours later)
--wrote a bunch of thank-you notes that disappeared...we'll see if they reach their destinations!